Harrison's Fund is a charity named after our eldest son; a cheeky and determined young man. Harrison is now in year 8 at school, enjoys computer games and cooking and winding up his little brother William. He is creative and has a great sense of humour. He also has Duchenne Muscular Dystrophy.
Duchenne is a fatal muscle-wasting condition that is currently taking Harrison's strength at an alarming rate. He now uses a wheelchair full time and we are determined to do all we can to find treatments, not just for Harrison, but for all those with Duchenne, to slow the progression of this condition.
Harrison was diagnosed in January 2011, a day that we will never forget - one blood test changed everything. Numb, we had to start down a path we never dreamt we would have to follow. We had to take those first steps that no one is ever taught. Our immediate thoughts, like all parents in this position, were to secure the best possible care for Harrison, and we are lucky to be close enough to the fabulous teams at Great Ormond Street Hospital.
Having spoken to some of the best organisations in the world fighting Duchenne, it's clear that for the very first time there may actually be a chance of a major breakthrough. Over the past few years, scientists have made giant strides in gene therapy and molecular medicine, and pharmaceutical companies have begun investing in research that may well bring Duchenne therapies to market.
We need your help to take advantage of this momentum. And make sure that there doesn't need to be another Harrison's Fund.
Alex and Donna Smith, Harrison's mummy and daddy
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