Harrisons Fund

Virtual Events

#FESTIVE500 Cycle
24/12/20- 31/12/20

500 kilometres. Eight days. The world?s favourite festive cycling challenge is back and this year it turns eleven. The challenge is simple in theory but often tough in practice: ride your bike for a total of 500km between Christmas Eve and New Year's Eve and sync your rides to Strava.

more info >

500 kilometres. Eight days. The world's favourite festive cycling challenge is back and this year it turns eleven. Over the last decade, just under half a million participants have ridden over 100 million kilometres. If you are up for it in 2020, why not Join us this year and help us raise money for Duchenne Muscular Dystrophy?.

Started in 2010, the goal of Rapha's Festive 500 is to keep us riding throughout the festive period and once again riders will need to record their endeavours on Strava to be in with a shout of winning Rapha's prizes. However, for the first time, Rapha are not offering a 'Roundel' (sew on patch) this year but you could still obtain one by completing their challenge and raising a minimum of £500 with us..

The challenge is simple in theory but often tough in practice: ride your bike for a total of 500km between Christmas Eve and New Year's Eve and sync your rides to Strava.

Here at Harrison's Fund, we are even offering you a bit more flexibility too. Whereas to complete Rapha's challenge all rides must be outdoors, we will accept virtual rides if properly recorded on Strava. We would expect you to complete the majority of rides outdoors of course, but if there is deep snow, you can still complete our part of the challenge and qualify for our commemorative Roundel..

The exclusive roundel, free in return for fundraising, will be an essential addition to the collection for past participants and a wonderful and prestigious souvenir for first timers.

SIGN UP HERE 

Birthday For A Birthday Campaign

Everyone loves birthdays!

A Birthday for a Birthday

Could you spare a birthday to give a child with Duchenne another one? Giving up just one of your birthdays can help us fund research into a cure and hopefully extend the lives of children with Duchenne. Kids born with Duchenne don't get  to have as many birthdays as they should. We are working to change that! 

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Most people hope to have at least seventy birthdays in their lifetime which can mean a lot of presents. Some of the birthday presents you receive you may absolutely love, but there will be those which end up being donated to charity shops or  regifted, or sold on eBay.  Children with Duchenne, a life limiting disease, sadly do not live to be 70,  so they have a lot less birthdays than most people. For most of the kids with Duchenne, their life span is merely 20 years. 

Duchenne Muscular Dystrophy is 100% fatal. Most children with it are usually in a wheelchair by the age of 12. One in 3,500 boys is born with it, and in the UK 2,500 kids have it at the moment. You can have it, no matter where you are or what your ethnic background is. A third of all cases start in the womb, with no warning before the baby is born. Girls can also get Duchenne with around 1% of Duchenne births being female. Most kids with it die in their late teens or early twenties·

It leads to respiratory failure, heart failure, and other debilitating orthopaedic complications. Although we know a lot about how Duchenne is caused, current treatments are pretty limited. Steroids and daily stretching are what most doctors recommend, but they have their drawbacks and don't prevent debilitating muscle contractures.

One of the projects that we are raising funds for is research into anti fibrotic drugs to alleviate these contractures so why not get involved and make a difference.

Decide to give up your birthday and instead donate the cost of your celebrations and ask your friends to donate to Harrison's Fund instead of giving you a present? You can set up your fundraising page here and you won't even have to get sweaty or dirty to feel good!! We will then send you some great tips to help make your fundraising the best it can possibly be. Thank you xx

tweety-pie

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