My son, Austin is now 4 years old and he was diagnosed with Duchenne Muscular Dystrophy shortly after his second birthday. It came as a complete and utter shock to us, we had no family history of this disease.
Austin on the outside looks like your everyday gorgeous little boy but as like all children with Duchenne he will start to struggle as his muscles deteriorate. We do not want Austin to lose his ability to walk, we want him to lead a normal.life and to be able to enjoy life's opportunities. Austin manages really well at the present time, we notice he isn't as strong as his little friends, he can't run or jump bit it doesn't stop him from making friends and joining in at his nursery.
Raising money for cruical research into this disease was what motivated me to get my running shoes on, to help Harrisons Fund, fund research into DMD. We do not have time on our hands as Austin's muscles will start to fail him over time. It's almost like a race against time to find a cure or a treatment so this generation of children can be saved from the horrible progression of the disease. As a Family Ambassador of Harrisons Fund I am proud to stand alongside them and will do all I can to support them in their goal to stop Duchenne or find a way to slow the progression down.
Having completed the Brighton Marathon last year I felt it was necessary to push the boundaries and attempt two marathons in 7 days this year. The first being Brighton and the second being the infamous London Marathon. As mad as it may sound I am excited about the forthcoming challenge and will do my best to raise awareness and money. I am looking forward to the fabulous atmosphere of the day and running over the finish line in London will be a massive achievement. I want to be a good role model for my daughter Ava who is 9 and of course Austin. I will dedicate a medal to each of them with pride knowing I have pushed myself so hard.
Austin has recently been enrolled on a medical trial at Great Ormond Street Hospital in London. He attends the hospital every week and will do for the next 80 weeks. He has a weekly infusion of medicine into his body and although this is really hard for Austin to understand it is essentially buying him time out of a wheelchair. My wish is for more medical trials to become available for other children who have this vile illness. Austin manages his infusions like a real trooper, he is incredibly brave and our everyday little hero.
Maxine Foster, Family Ambassador
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