Time is precious. With the average Brit clocking up 1,674 hours a year at work and 5 million of us regularly doing unpaid overtime, it is easy to feel that there are few hours in the day for anything else. Many of us are so busy turning the hamster wheel of life that it is easy for days, weeks and months to go by without spending quality time with those we love.
Families battling Duchenne are acutely aware of time, and their lack of it. Duchenne Muscular Dystrophy affects 2500 children in the UK right now and our namesake Harrison is just one of these boys. While the average person has probably never heard of Duchenne, it affects one in every 3600 births and can strike regardless of age, race or health. Children with Duchenne are unable to produce dystrophin, an essential component in muscle growth. As a result, their muscles waste away one at a time. Children with Duchenne are typically wheelchair bound at the age of 12 and can suffer respiratory failure, heart failure, and other debilitating orthopaedic complications.
Duchenne is a ticking time bomb ringing loudly in the ears of these families. They are united by one dreadful, universal truth.
It is 100% fatal. And there is no cure.
But there is hope. Harrison’s Fund has one goal - to get as much money as possible into the hands of the world's best researchers, who are working to find a cure for Duchenne. New advances in gene therapy and molecular medicine are being made and it is clear we are on the cusp of a major breakthrough.
This is why we are asking you to Brunch. Inspired by Harrison, our own budding chef, we want you to take time out for food, friends and family this June and raise money for Harrison’s Fund. The money raised through Harrison’s Brunch this year will go to fund the clinical trial of pioneering new drug Carmaseal , which could be vital in the battle against Duchenne.
Whether you are a business, school, community group or group of friends, join us for a delicious Brunch this year and make your time count.
COPYRIGHT 2014 HARRISON’S FUND
ALL RIGHTS RESERVED | REGISTERED UK CHARITY NO. 1146662
SITE BY MZURI DESIGN